Tuesday, November 1, 2011

Final Prognosis: Where We Go From Here

After a week of testing and care at the hospital, we were finally given a cause for Noah's seizures and subsequent hospital stay. However, the final answer is hardly comforting. Nor is it definitive 
Noah's seizures were caused by brain damage he received at some point during pregnancy. The damage was caused by a lack of oxygen (blood) to the brain at some point. The doctors can't pinpoint when this happened, or how it happened for that matter. But the technical name is Hypoxic-ischemic encephalopathy, or HIE for the average person.
He has multiple spots, or dead areas in his brain. Some in the frontal lobe, in the optical lobe, and in the Corpus Collosum, the part that connects the two hemispheres of the brain.
They called the damage "moderate" which basically states that he is stage 2 of HIE. He also showed, or shows, some symptoms of the less severe stage 1. After getting his seizures under control all that you can really do is wait and watch his development.
Only time will tell the extent of the damage to little Noah's brain. Or how well his brain adapts to its injury and "rewires" around the damaged spots. Nobody can tell us just what we will be dealing with in the coming days and months. We need to keep a close eye on Noah's development and when he reaches the milestones all children reach as they age. (holding up his head, crawling, talking, walking, etc.)
So far he seems to be doing great, and I can only hope for his progress to continue at this rate. Regrettably, I know things aren't always so picture perfect. I have looked into the official numbers on infants with his sort of injury and the odds aren't perfect, but at worst he holds a 50/50 chance of having a serious disability in the future. However most of the disabilities have a lower maybe 10-30% chance of showing up in his life.
Only time will tell...but until we know where he stands we will do therapy and anything we can as if he has the worst of all chances. and when he proves all of this wrong, we will go from there....

one day at a time, that is all we can do now.

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