Noah will have a visitor tomorrow. A representative from the “Early On” program will be stopping by tomorrow to evaluate Noah’s development. As well as note any concerns and suggest possible courses of action, such as therapy and so on.
Early On is a program that is run through the schools here in Michigan and is free for children born with conditions like Noah was. They will (pending the diagnosis) probably be stopping out every week or every other week and doing physical therapy with Noah. as well as educating Katie and I on exercises to do with Noah to try and curtail any negative effects of his injury. I am extremely grateful that programs like this are available to families in our predicament. But I can’t even begin to describe the fear and anxiety I am feeling about what they may find...
As you know from this blog, there are many things i have noticed about Noah that just don’t seem right, and I am afraid that they will confirm those fears. Not that this fear would stop me from having him looked at or anything like that. It’s just that right now they are just fears from an untrained eye. When a professional points them out it means that there may be something seriously wrong and then there is that to deal with on top of everything else.
Children diagnosed with HIE, especially stage II & III have a chance of cerebral palsy. Most people who don’t know think of Cerebral Palsy as an actual disease or injury, but it is usually more or less a symptom of another problem such as brain damage in a developing brain. And if this is the case, the sooner it is caught, the more we can do to limit the effects it may have on Noah’s life. Along with our other concerns about Noah, this is making for a nerve wrecking experience. But still, I would rather know and deal with the problem than ignore it and hope for the best.
I will be sure to update everyone after his appointment. And maybe even make some videos of the exercises they show us to help others out who arent fortunate enough to have a program like Early On in their area.
Wish us luck!