Thursday, December 6, 2012

Big Day For Noah


Noah was one busy little guy yesterday. And by extension so were mom and dad.
Not long after we got up for the day. Noah and Mom went to therapy at the hospital just down the street, nothing special there. considering he is there 3 times a week. But then after a quick nap and meal it was time to work out again because Early On stopped by to do a little more therapy. Noah did great at both sessions, in fact he did VERY well with early on. He is making progress on standing, though his balance is still an area of great concern.
Not only did Noah have physical therapy twice in under 4 hours, there was more. Right after early on finished up we suited up the little one and drove off to Ann Arbor. Noah had an appointment with his constantly overbooked neurologist. (usually booked a year in advance.) After a long wait in the clinic we pretty much just answered some questions and she did a quick evaluation of Noah and suggested that we continue our current schedule of therapy and treatments. She did mention that his cognitive and social skills are a bit behind, But not drastically. He is around the 9 month milestones rather than the 12, but considering the time it took his brain to "rewire" around the damaged areas it isnt too alarming. And really, most of his areas of concern can be traced back to a physical disability rather than a seeming mental problem. So that is always good news. 
It sounds pretty sure that Noah will be getting leg braces in the near future to help with is foot placement while standing, and probably  not long after that he will get another set that allows his foot to move when he starts learning to walk. 
So there was no real big news on this big day. But another positive marker in his progress. 

Monday, December 3, 2012

13 Months+ : So Proud Of My Little Guy


I havent written exclusively about Noah in quite a while on here so i think now would be a good time. 
Noah has changed so much in the past few months. His physical situation is still...well how should i put this....ideal, but he is showing progress and determination to progress as well so we are just taking that as it happens. The changes i have noticed lately are more in his personality and cognitive abilities. 
He has gone from a baby to a child in my eyes. He now has clear motives, and you can see him working everything out in his head. He is communicating more but still not really "speaking" we are working on a few signs to help him communicate with us better because speech may be a bit more delayed than with some kids, even if the intent is there. 
I guess my big this is he is much more independent lately. We finally got him to feed himself a bottle and now he only likes to do it himself. He doesnt like to be fed but to feed himself, He even seems pretty content just playing by himself for long periods now. We are always right across the room but he stays entertained all by himself. He still loves to play with us as well, but it is nice that he can sort of entertain himself so i can get things done (like this post for example) 
My fears of any serious mental disabilities are mostly gone, i still dont count out minor issues, but for the most part he seems like a very intelligent and capable little guy who just has a few more hurdles than most kids his age. Which this has always been my biggest concern. A Cerebral Palsy diagnosis doesn't mean cognitive problems automatically, but they do have a tendency to go hand in hand. I think that is one of the biggest misconceptions about Cerebral Palsy. 
Anyway, i was just playing with Noah tonight and I really got to see just how far he is coming in recent days. And i cant help but notice that there is just a different look in his eyes, like he understands his world better than he once did. It is amazing to see his progress and so exciting every time he does something for the first time. I mean it is exciting when any child hits milestones and has their "firsts." But when you know your child has a chance of never reaching that "first" it just adds so much to the celebration. 
So, Noah is doing well. I will try to share some photos and videos soon! if he allows me to that is! 
There was an error in this gadget